ABSTRAKCaregiver keluarga memegang peranan penting dalam perawatan pasien kanker
stadium lanjut yang mengalami masalah akibat kanker dan terapinya. Penelitian
bertujuan menggali pengalaman caregiver dalam konteks perawatan. Metode
penelitian kualitatif dengan pendekatan fenomenologi deskriptif. Pengumpulan
data dengan wawancara mendalam pada 5 partisipan sesuai kriteria inklusi.
Temuan memberikan 7 tema utama, yaitu: reaksi caregiver saat mengetahui
diagnosa kanker stadium lanjut, pemahaman caregiver tentang kanker, caregiver
peran yang melelahkan, caring pada pasien kanker stadium lanjut, mendampingi
pasien berobat, beban caregiver pasien kanker, harapan caregiver. Kesimpulan
adanya pemahaman caregiver yang kurang dalam merawat pasien kanker
mengakibatkan timbulnya distress akibat beban peran. Disarankan pemberian
informasi edukasi kanker, kenyamanan caregiver sehingga dapat meningkatkan
kualitas hidup pasien kanker stadium lanjut.
ABSTRACTFamily caregivers play an important role in the hospitalization of advanced
cancer patient who experience problems due to cancer and its treatment. The
study aimed to explore the experience of caregivers in helping patient during
hospitalization. Qualitative research method with a descriptive phenomenological
approach was used. Collecting data done by in-depth interviews on 5 participants
according to inclusion criteria. The findings provided seven main themes, namely:
caregiver?s reaction confirmed advanced cancer diagnosis, caregiver
understanding of cancer, a grueling caregiver role, caring for patients with
advanced cancer, treatment with the patient, caregiver burden of a cancer patient,
caregiver expectations. As the conclusion, lacking of understanding on caregiver
in caring cancer patients has resulted in distress due to the burden of
roles. Suggested providing cancer education information, caregiver convenience
so as to improve the quality of life for patients with advanced cancer.