ABSTRAK
Keberadaan anak dengan tunagrahita akan menjadi stressor tersendiri bagi keluarga karena keluarga merupakan suatu sistem dan akan menimbulkan masalah bagi masyarakat, keluarga, maupun individu penyandangnnya. Tujuan penelitian menguraikan secara mendalam tentang pengalaman keluarga dalam merawat anak dengan tunagrahita. Desain penelitian metode kualitatif dengan pendekatan fenomenologi deskriptif. Tehnik pengambilan partisipan secara purposive sampling. Pengumpulan data pada tujuh partisipan dengan indepth interview dan field note kemudian dianalisis dengan motede Colaizzi. Penelitian ini menghasilkan lima belas tema yaitu takdir, beban keluarga, respon psikologis, perubahan emosional, perubahan perilaku, upaya mencari bantuan kesehatan, upaya mencari bantuan lain, pemberdayaan keluarga, dukungan sosial, dukungan finansial, keterbatasan sumber perawatan, akses terhadap pelayanan kesehatan, public stigma, manejemen pelayanan kesehatan yang efisien dan efektif serta makna dan hikmah. Rekomendasi penelitian ini meningkatkan pengkajian terkait beban yang dirasakan keluarga dan potensi keluarga
Abstract
The presence of these child would be a stressor for each family member because family is a system and can create problems for society, family, as well as for the patients. Purpose of this study is to describe about family experience in caring of child with intellectual disorder in-depth. Study design using qualitative methodwith descriptive phenomenology approach. Through retrieval technique of participants in purposive sampling. Data collected to seven participants by indepth interview technique and field note. In-depth interview result and field note analyzed using Colaizzi method approach. In this study identified fiveteen themes as a result of study are destiny, family burden, psychological response, emotional and behavior changing, effort in getting health and another supports, family empowerment, social and financial supports, limitation of caring sources, access to health services, public stigma, efficiency and effectiveness of service management, meaning and spiritual wisdom. Study recommendation for psychiatric nursing are improving assessment of related burden experienced by family du, family potency in empowering to strengthen family coping mechanism in caring child with intellectual disorder. |
