Penelitian ini membahas tentang gambaran kualitas hidup yang berhubungan dengan kesehatan (Health Related Quality of Life) pada penderita autoimun jenis Sindrom Sjögren. Penelitian ini menggunakan pendekatan kualitatif dengan jenis penelitian eksploratif. Penderita Sindrom Sjögren memiliki gangguan gejala fisik seperti kekeringan pada mulut, sakit pada persendian, dan kelelahan. Gejala fisik tersebut berpengaruh terhadap kualitas hidup penderita dalam dimensi physical well-being, psychological well-being, dan social well-being. Hasil penelitian menunjukkan bahwa penderita Sindrom Sjögren memiliki gangguan terhadap physical well-being dengan gejala fisik dan gejala kekeringan yang dimiliki dan berdampak terhadpa fungsi tubuh dan aktivitas serta partisipasi penderita. Dalam dimensi psychological well-being, penderita Sindrom Sjögren memiliki tingkat kecemasan dan stres yang tinggi, kepercayaan diri dan kurangnya pemahamanan terhadap penyakit berimplikasi terhadap depresi dan kemampuan kontrol diri yang kurang memadai. Selain itu, Sindrom Sjögren juga berdampak pada domain social well-being penderita yaitu pada gangguan kehidupan sosial, gangguan keberfungsian peran sosial dalam keluarga dan pekerjaan, beban finansial, dan permasalahan yang terjadi di rumah sakit yang menimbulkan stres bagi penderita. Penderita Sindrom Sjögren memiliki dukugan sosial melalui pasangan, sahabat, dan dokter jiwa yang berdampak positif terhadap social well-being.
This study discusses the description of Health Related Quality of Life in autoimmune patients with Sjögren's Syndrome. This study uses a qualitative approach with an exploratory research type. People with Sjögren's Syndrome have physical symptoms such as dryness of the mouth, joint pain, and fatigue. These physical symptoms affect the patient's quality of life in the dimensions of physical well-being, psychological well-being, and social well-being. The results showed that patients with Sjögren's Syndrome had disturbances in physical well-being with physical symptoms and dryness that had an impact on body functions, activities, and participation of patients. In the dimension of psychological well-being, patients with Sjögren's Syndrome have high levels of anxiety and stress, lack of self-confidence, and lack of understanding of the disease have implications for depression and inadequate self-control abilities. In addition, Sjögren's Syndrome also has an impact on the social well-being of the patients, social life disturbances, impaired functioning of social roles in family and work, financial burdens, and problems that occur in hospitals that cause stress for patients. Patients with Sjögren's Syndrome have social support through their partners, friends, and psychiatrists which have a positive impact on their social well-being. |
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