Hasil Pencarian  ::  Simpan CSV :: Kembali

Abstrak :
Talasemia merupakan penyakit hemolitik herediter yang bisa menyebabkan masalah psikososial, emosional dan perilaku terutama pada remaja. Terapi kelompok terapeutik merupakan kegiatan kelompok untuk mengatasi masalah perkembangan remaja, membantu mengatasi stres, emosi, akibat penyakit fisik, krisis tumbuh kembang atau penyesuaian. Manajemen stres guided imagery merupakan salah satu cara pengelolaan stres dengan memanfaatkan potensi diri sebagai sumber efektif untuk mengatur emosi serta mengatasi masalah. Tujuan penelitian ini adalah menilai pengaruh terapi kelompok terapeutik remaja dan manajemen stres guided imagery terhadap tingkat stres, koping, resiliensi dan konsep diri remaja talasemia. Desain penelitian menggunakan quasi eksperimental pre-post with control group. Tehnik pengambilan sample menggunakan purposive sampling, Hasil penelitian menunjukan bahwa remaja talasemia kelompok intervensi mengalami perubahan yakni penurunan tingkat stres, perubahan strategi koping, peningkatan resiliensi dan peningkatan konsep diri dibandingkan kelompok kontrol setelah pemberian terapi kelompok terapeutik dan manajemen stres guided imagery (p value < 0.05). Terapi kelompok terapeutik dan manajemen stres guided imagery berpengaruh terhadap tingkat stres, koping, resiliensi dan konsep diri remaja talasemia. Terapi kelompok terapeutik remaja dapat dijadikan rujukan terapi, dalam pencegahan munculnya masalah psikososial pada remaja talasemia sehingga tugas perkembangan dapat dicapai secara optimal. ......Thalassemia is a hereditary hemolytic disease that can cause psychosocial, emotional and behavioral problems, especially in adolescents. Therapeutic group therapy is a group activity to overcome adolescent development problems, help overcome stress, emotions, due to physical illness, growth and development crises or adjustments. Guided imagery stress management is one way of managing stress by utilizing one's potential as an effective source for regulating emotions and overcoming problems. The purpose of this study was to assess the effect of adolescent therapeutic group therapy and stress management guided imagery on stress levels, coping, resilience and self-concept of thalassemia adolescents. The study design used quasi-experimental pre- post with control group. The results showed that the intervention group thalassemia adolescents experienced changes namely decreased stress levels, changes in coping strategies, increased resilience and increased self- concept compared to the control group after therapeutic group therapy and guided imagery stress management (p value < 0.05). Therapeutic group therapy and guided imagery stress management affect stress levels, coping, resilience and self-concept of thalassemia adolescents. Adolescent therapeutic group therapy can be used as a therapeutic reference, in the prevention of the emergence of psychosocial problems in thalassemia adolescents so that developmental tasks can be achieved optimally.

Abstrak :
Latar belakang. Pandemi COVID-19 dapat menyebabkan peningkatan masalah psikososial pada remaja dari populasi umum. Talasemia merupakan penyakit kronik yang banyak ditemukan pada anak dan remaja di Indonesia. Pasien dengan penyakit kronik rmerupakan kelompok yang rentan mengalami peningkatan masalah psikososial selama pandemi COVID-19. Peningkatan masalah psikososial menyebabkan risiko peningkatan morbiditas dan penurunan kualitas hidup. Pandemi juga dapat berdampak pada praktik transfusi darah pasien talasemia. Saat ini belum diketahui gambaran masalah psikososial dan praktik transfusi darah pada remaja talasemia mayor di Indonesia selama masa pandemi COVID-19. Tujuan. Mengetahui gambaran masalah psikososial pada remaja dengan talasemia mayor selama pandemi COVID-19 di RS Cipto Mangunkusumo, Jakarta, dan dampak pandemi COVID-19 pada praktik transfusi darah di RSCM. Metode. Penelitian ini merupakan studi potong lintang yang dilakukan pada 121 pasien talasemia mayor berusia 10 sampai <18 tahun di RSCM. Penilaian psikososial dilakukan melalui pengisian Strengths and Difficulties Questionnaire (SDQ). Penilaian depresi dilakukan melalui pengisian Children’s Depression Inventory (CDI). Analisis komparatif kategorikal berpasangan dilakukan untuk menilai perbedaan frekuensi transfusi dan nilai rerata Hb pretransfusi sebelum dan selama pandemi COVID-19. Hasil. Sebanyak 11,6% remaja talasemia mayor memiliki total skor SDQ abnormal dengan gambaran masalah meliputi masalah emosi (18,2%), masalah conduct (9,9%), hiperaktivitas (5%), masalah hubungan dengan teman sebaya (8.3%), dan masalah perilaku prososial (1,7%). Sebanyak 19% remaja talasemia mayor mengalami peningkatan gejala depresi berdasarkan penilaian CDI. Tidak terdapat perbedaan bermakna pada frekuensi transfusi sebelum dan selama pandemi COVID-19, tetapi terdapat perbedaan bermakna pada pola interval transfusi pasien (p=0,017) dan nilai rerata Hb pretransfusi (p=0,043) sebelum dan selama pandemi COVID-19. Volume darah yang didapatkan oleh pasien talasemia mayor lebih rendah selama pandemi COVID-19 daripada volume darah yang dibutuhkan yang bermakna secara statistik (p<0,001). Kesimpulan. Skrining masalah psikososial pada remaja talasemia mayor menunjukkan masalah yang paling banyak ditemukan selama masa pandemi COVID-19 adalah masalah emosi dan masalah conduct, dengan sejumlah pasien mengalami peningkatan gejala depresi. Pandemi COVID-19 memberikan dampak pada pola interval transfusi darah oleh pasien talasemia mayor. ......Background. The COVID-19 pandemic may increase the risk of psychosocial problems in adolescents from general population. Thallasemia is highly prevalent chronic disease in children and adolescents in Indonesia. Patients with chronic disease are vulnerable to have more psychosocial problems during the COVID-19 pandemic. An increase in psychosocial problems may lead to high morbidity and the risk of decreased quality of life. The pandemic can also have an impact on the transfusion practice of thalassemia patients. The psychosocial problems and its impact on transfusion practice in adolescents with thalassemia major during the COVID-19 pandemic in Indonesia have not been established. Objectives. To evaluate the magnitude of psychosocial problems in adolescents with thalassemia major during the COVID-19 pandemic and the impact of the COVID-19 pandemic on the transfusion practice at Cipto Mangunkusumo Hospital, Jakarta. Methods. This is a cross-sectional study on 121 thalassemia mayor patients aged 10-<18 years old at Cipto Mangunkusumo Hospital. Psychosocial aspect was evaluated using the Strengths and Difficulties Questionnaire (SDQ) form. Depression was further assessed using the Children’s Depression Inventory (CDI) form. A comparative paired categorical analysis was performed to analyze the difference between before and during the COVID-19 pandemic concerning transfusion frequency and average pretransfusion haemoglobin. Results. There are 11,6% thalassemia major adolescents with abnormal total SDQ scores including emotional problems (18,2%), conduct problems (9,9%), hiperactivity (5%), peer problems (8.3%), dan prosocial behavior problems (1,7%).  Nineteen percents thalassemia major adolescents experienced elevated number of depressive symptoms. There was no significant difference between before and during the COVID-19 pandemic concerning transfusion frequency, but there were significant difference between before and during the COVID-19 pandemic concerning blood transfusion pattern (p=0,017) and average pretransfusion haemoglobin (p=0,043). The blood volume obtained by thalassemia major patients was also lower during the COVID-19 pandemic than the required blood volume that is statiscally significant(p<0,001). Conclusion. Psychosocial screening in adolescents with thalassemia major during the COVID-19 pandemic showed that the most common problems encountered were emotional problems and conduct problems, with a number of patients experiencing elevated symptoms of depression. The pandemic had an impact on the blood transfusion pattern for thalassemia major patients.